There are no buckets on my bucket list

We promised our son we’d take him fishing for his 21st birthday. We drove 12 hours from Tulsa to Galveston to do it. I got to the marina in the morning and asked the first mate where the facilities were on the boat.  He said if you open this door in the front of the…

Please Help Me Turn Google Purple For November.

My son was diagnosed with epilepsy in 2000. This petition to turn Google Purple for November was started by Tiffany Kairos and I’m supporting it. Would you please take a moment and sign your name. It’ll take less than 60 seconds. Thanks.   November 1st is Epilepsy Awareness Day! Epilepsy affects over 3 million Americans…

D-Man is 18 Today.

My youngest son is turning 18 today. I cannot begin to count the years. His joyful spirit, insatiable curiosity, artistic talent and eye for the spiritual has left his father and myself deeply changed. I guess he’s finished with his job of raising us to be good parents. He’s an adult now. WOW. Am I…

Fall Break: Letting Go Again

“Mom, could you please take your hands off the ceiling of my car? You’re freaking me out.” — D-man yesterday as he drove home from school. I rode with my youngest for the very first time yesterday. He did great. I looked like spider woman with my arms splayed in every direction and my feet pumping imaginary…

Living with Epilepsy: D-man has his permit

Pictures aren’t allowed. I wanted to take a photo of D-man with his permit, but he won’t let me. We got it yesterday. The permit that is. The licence will come in six months after he logs the hours and classes needed, as well as passes the state drivers test.  It took longer than we…

Living With Epilepsy: Baseball

It doesn’t matter that he’s never played before, neither has 3/4 of the team. It doesn’t even matter if the ball is coming at him at 70 miles per hour, he wants to catch. Turns out, he’s really good at catching. It doesn’t even matter that I have a thousand what if scenarios running through…

Summer Life with Boys

Dear readers: Today’s post is more tongue in cheek than my usual fare. Being home with teenagers this summer is both a joy and well, strange. A lot has changed now that my youngest is 16 and my oldest is leaving for college. Long gone are the days where I could read about 101 fun…

An Awesome Day

I gave birth – via C-Cection – to a wonderful 7 lb 1 oz baby boy on June 10, 1993. Dillon’s lungs were not fully developed and he was what they call a “blue baby” and he was rushed to the EOPC at St Francis Hospital, where he spent 14 days before they let me…

Six Months Seizure Free and the Freedom to Drive

Dillon’s Pen and Ink Drawing for Art We’ve come a long way baby! Years ago,  epilepsy was a death sentence. They used to take epileptics to the city gates and stone them to death. We’ve grown from that to denial of rights.  50 years ago, epileptics were looked upon with fear and trepidation. They were…

Notso Wordless Wednesdays

I’m breaking all rules of blogging today. This is wordless Wed, and yet, I have words. Lots of them. I’m relaying a story and not engaging in a dialog, and I’m very self indulgently using the word “I” more than “you.”  Even so, I want you to read this. I’m trying to be careful how I…

Epilepsy Claims Celebrity Son (Sad Blog Warning)

This news report absolutely ripped my lungs out today. It hit a little too close to my heart and my deepest fears. John Travolta’s Son was found dead Friday. – John’s son Jette was only 16 and had epilepsy caused by a childhood illness when he was two. Jette apparently had a seizure in the…

Success with Lamictal

It’s been five weeks since we made the trip to the Children’s Hospital in Fort Worth Texas, and I’m happy to report that Dillon’s new medication is working. He has not had a seizure since October 5. Dr Malik put him on a low dose of Lamictal (25 mg twice a day) and Depakote ER…